CHARGE Syndrome is a rare genetic condition that can affect hearing, vision, balance, growth, development and multiple body systems. While the challenges can be significant, so too is the resilience, determination and spirit of those living with CHARGE syndrome.
We proudly support the work of CHARGE Syndrome Australia, which connects families with information, expert advice and a supportive community, ensuring no family faces the journey alone.
Together, let’s raise awareness, promote inclusion, and support better outcomes for all Australians living with CHARGE syndrome.
CHARGE Syndrome Awareness Day is held internationally on 8 August each year. It was established to raise awareness of CHARGE syndrome and marks the anniversary of the publication of the research identifying the CHD7 gene associated with the condition #CHARGESyndromeAwarenessDay#CHARGESyndrome#CHARGESyndromeAustralia